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Harry Johnson Trust Home page

The Harry Johnson Trust was established in November 2014 following the death of seven year old Harry in July of that year.

Harry died following a nine month fight with Double Hit Non-Hodgkins Lymphoma.

The trust offers help and support to children and teenagers who receive care from the Oncology Team at The Princess Royal Hospital in Shropshire.

Harry Johnson

Where does my money go?

Everyday Essentails

We provide the little things that might have been forgotten or needed during the child’s stay on the ward. This includes shampoo, toothpaste, sticker books, magazines, toys and games. We also provide vouchers for nearby supermarkets so that families can buy what they need for inpatient stays.

Harry’s House

The trust is fortunate to own a static caravan in Mid Wales, which families can use for much needed time together. Families are able to use the caravan and the park’s luxury facilities free of charge knowing that they are not far from the hospital if they need it. The caravan is also used by bereaved families and the wonderful staff who give so much to the children and sometimes need time away too. The local children’s oncology and haematology community are welcome to book time there.

Special Gifts

We also work closely with the hospital in Telford to grant small wishes and individual requests for children. These gifts are unique to every child, based on the hospitals knowledge of each child in their care. Gifts we have provided include a garden playhouse, white goods, financial support and mobile phones for teenagers to keep in touch with friends.

Family Fun

We give children gift vouchers for local shops, restaurants or places to visit so they can spend quality time with those they love, or buy a little toy or game to help pass the time in hospital. We hope this helps to ease a little financial pressure at a time when families most need time together. We also provide vouchers for local supermarkets throughout the year with additional vouchers at Christmas. We provide Pantomime tickets for the local theatre each Christmas and chocolate treats both at Christmas and Easter for all the children and their siblings.

Perfect Pillows

After losing their hair from chemotherapy, children sometimes find ‘normal’ pillowcases are rough against the delicate skin on their bare head. We give every child some soft fleece pillowcases to try and make bedtime and resting a little more comfortable. We also provide fleece blankets too.

 

Memory Bears

Sadly, not all childhood cancers are cureable. We offer loved ones the opportunity to have a patchwork quilt or a teddy bear made from their child’s clothing, something to hug and remember. The Trust will put parents in touch with people who can do this for them and will pay for the quilt or bear to be made. We help with funeral costs should the worst happen.

 

Supershoes UK

We pay for children to have a pair of Supershoes if they would like some, and have linked with this UK charity to make sure this happens!

Find out more at
www.supershoes.org.uk

Beads of Courage

We fund the Beads of Courage programme at The Princess Royal Hospital in Telford.

Learn more about the beads here
www.bechildcanceraware.org

Support tailored to the individual child

We work closely with staff on the children’s oncology and haematology ward to make sure that the right child gets the right help at the right time. Things we have done for individual children and families include disabled car hire, financial support, help towards the cost of funerals, parties and corporate tickets to football matches. We do whatever the child needs whenever we can.

 

Where do I send my money to?

You can donate directly to The Harry Johnson Trust at

Donations can also be made via cheque or cash.
Please send your donations to us, payable to The Harry Johnson Trust, to:

The Harry Johnson Trust
Lower Farm
Vennington
Shrewsbury
SY5 9RG

Thank you to everyone who has made a donation, fundraised or
provided help for our projects.
Your support and generosity are very much appreciated.

Thank you.

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